About the Campaign
The Campaign for Patient Access was launched by the American College of Cardiology in December 2009 as a national effort to reverse Medicare physician fee schedule cuts that threatened cardiovascular care. The site provided background on the issue, the ACC's legislative and legal response, resources for patients and practices, a newsroom tracking coverage across the country, and ways for supporters to share their stories and support the campaign.
From the Newsroom
Medicare Meltdown: Access to Health Care in "Critical Condition"
A press release warning that cardiology access was in critical condition due to Medicare payment cuts.
Read more
Cardiology Takes Legal Action Against Medicare
The ACC filed suit against HHS Secretary Kathleen Sebelius over the 2010 Physician Fee Schedule.
Read more
ACC Statement on Health Care Reform
The ACC used the State of the Union address to highlight the need to reverse the Medicare cuts.
Read more
Medicare Patients and Physicians Join Petition Drive
Patients and physicians in Washington, DC joined a petition drive calling on Congress for Medicare reform.
Read moreA small business owner’s long drive to specialist heart care
Picture Maria Alvarez, who runs a small bakery in Ballarat, Victoria. Her regulars know her for the morning flat whites and the sourdough loaves she puts out on Saturdays. After a routine check raised concerns about her heartbeat, her GP sent her to a cardiologist in inner Melbourne. The clinic was about 120 kilometres away, but with traffic and an early start from Ballarat, the round trip consumed most of a working day.
This patient story follows a small business owner forced to drive hours for a cardiologist and shows how specialist access reaches into a household’s income, staffing and peace of mind. Maria’s account is an illustrative composite drawn from common access barriers. Its details reflect difficulties familiar in regional and rural Australia, where the nearest appropriate cardiac service may not be in the next suburb or even the nearest town.
The appointment that consumed an ordinary weekday
Maria left before sunrise with her referral, medication list and a folder of results. She arranged for a baker to open the shop and asked two staff members to handle the morning orders. The Calder Freeway was moving when she set off, but traffic near central Melbourne turned a routine journey into a long, uncertain one. She reached the clinic exhausted, having spent the better part of her day in a car.
Her cardiologist recommended further testing and a follow-up review, so another Melbourne visit was booked. That meant another early closure, another substitute worker and another morning of sales left to others. Maria began calculating the true cost of care in lost revenue, not only the amount on the bill. Fixed costs continued whether she was at the oven or in an appointment room.
Waiting did not make the travel disappear. A referral could sit in a queue while Maria continued to feel unwell, organised household logistics and wondered whether her symptoms might worsen before review. Her GP could support her meanwhile, but a general practice consultation did not replace the specialist skills or hospital equipment needed for a full cardiac assessment.
The cost hidden behind a referral
Heart care can involve appointments that look brief on paper but demand preparation and recovery. For Maria, driving meant hours of concentration while she was already tired and worried. She also had to accept that arranging tests might mean returning to Melbourne. For severe chest pain, fainting or sudden breathlessness, the appropriate response in Australia is to call 000 rather than wait for a specialist slot.
The direct costs included fuel, parking and time away from paid work. Specialist consultations may attract a Medicare rebate, but many patients still pay a gap, and scans or investigations can create additional charges. Bulk-billing is common in some general practices but should not be assumed for every service. A GP visit could be inexpensive while the specialist journey remained financially significant for a small business owner.
Maria’s partner shifted their own work to care for their daughter, while a regular customer covered a Saturday shift. She described the burden as “doing it tough”: ordinary life was being rearranged around a referral, yet she worried that raising concerns would seem ungrateful. That pressure can delay care, discourage follow-up and leave families carrying the gap between a policy promise and a usable service.
When a local visit is not enough
A general practitioner in Ballarat can assess symptoms, order an ECG, start treatment and manage many cardiovascular risks. Some people receive ongoing care locally, but complex rhythm problems, suspected heart failure and decisions about procedures may require a cardiologist, advanced imaging or a hospital team. Availability varies, and a referral does not guarantee a timely appointment or one close to home.
Australia’s health system combines public hospitals, Medicare and private specialist services, so the route to cardiac care varies. A public referral may involve a regional hospital or a metropolitan waiting list, while private care can offer more scheduling choice but may involve gap payments. Telehealth can reduce travel for selected reviews, although eligibility, clinical needs and costs differ. A video appointment cannot replace every hands-on assessment.
The same issue of specialist sustainability appears in another national policy debate. Campaign for Patient Access was launched by the American College of Cardiology to oppose Medicare physician fee schedule cuts that could affect cardiovascular care. The campaign news updates track legal and legislative responses to that policy issue. American Medicare does not fund Australian care, but the access concern is relevant: payment decisions that make specialist work less sustainable can tighten access, especially where clinicians are already scarce.
Building a connected cardiology pathway
A better pathway starts before the specialist appointment. Maria’s GP can provide a clear referral, medication list, relevant results and a concise record of what has changed. The specialist can check whether information is missing and avoid unnecessary duplication. Patients should confirm the precise location, expected waiting period and total cost, including any imaging, before making the trip.
Shared care can keep more support close to home. A regional practice or local hospital may be able to repeat blood tests, perform an ECG or provide wound care under agreed protocols, while the cardiologist reviews results by telehealth where appropriate. Medicare may support eligible specialist video consultations, and some appointments can be booked through a local health service. These options require coordination across the referral, follow-up and local review.
Practical support also matters. Transport assistance schemes, community health services and flexible appointment times can reduce the strain of a long trip, although eligibility and availability vary. For a business owner, even a telehealth slot can be difficult if it falls during peak trading. After treatment is recommended, patients should be told who will manage medication changes, when results will be reviewed and where to seek urgent help.
Different routes, different burdens
No single route removes every burden. The useful comparison is between travel, waiting time, clinical benefit and out-of-pocket cost. A longer trip may provide access to a subspecialist or tests unavailable locally, while local and virtual options may shorten the journey without meeting every clinical need. Decisions should begin with the patient’s condition, not a preferred setting.
| Care route | Travel, waiting and cost | Main benefit | Important limitation |
|---|---|---|---|
| Regional GP and local diagnostics | Usually local, though repeat visits may be needed | Assessment, ECG, medication management and referral | Advanced testing or subspecialty review may still require travel |
| Public hospital cardiology | Varies with urgency, service and waiting list | Public diagnostic and treatment pathways | Long waits and travel may remain |
| Private specialist | Often a long trip and possible gap payment | Wider scheduling choice and access to procedures | Travel, fees and repeated appointments remain patient costs |
| Telehealth with local follow-up | Less travel, subject to eligibility and coverage | Specialist review of symptoms, results and medications | Some diagnoses need examination or in-person tests |
The most workable plans often combine a local review with specialist input and an in-person visit when testing is required. That arrangement limits repeated journeys without abandoning concentrated expertise. It also creates a clear point of contact for the GP, practice manager and specialist, so a delayed result does not become another unexplained gap in care.
Add your voice to the access campaign
Maria’s experience shows why access belongs in every cardiovascular policy debate. Patients can help by documenting the distance travelled, time spent waiting, costs paid and effects on work and family. With consent, a personal account can illustrate the effect of service design for decision-makers. Examples are especially valuable when a system counts appointments but overlooks the burden required to attend them.
Australian patients and clinicians can send an account to their federal MP, state health minister or relevant health service, asking how local cardiac access, waiting-time transparency and coordinated follow-up can be strengthened. People following the American campaign can use its patient-story and advocacy channels to add their experiences and support efforts to preserve cardiovascular services. Submissions should stay factual, describing the referral, delay, distance and consequences without identifying another patient.
Share the story, record the real cost of the journey and speak up for timely cardiology care close to home. If distance has forced you to sacrifice work, family time or urgent treatment, make sure the people shaping health policy hear it.
Campaign for Patient Access