About the Campaign
The Campaign for Patient Access was launched by the American College of Cardiology in December 2009 as a national effort to reverse Medicare physician fee schedule cuts that threatened cardiovascular care. The site provided background on the issue, the ACC's legislative and legal response, resources for patients and practices, a newsroom tracking coverage across the country, and ways for supporters to share their stories and support the campaign.
From the Newsroom
Medicare Meltdown: Access to Health Care in "Critical Condition"
A press release warning that cardiology access was in critical condition due to Medicare payment cuts.
Read more
Cardiology Takes Legal Action Against Medicare
The ACC filed suit against HHS Secretary Kathleen Sebelius over the 2010 Physician Fee Schedule.
Read more
ACC Statement on Health Care Reform
The ACC used the State of the Union address to highlight the need to reverse the Medicare cuts.
Read more
Medicare Patients and Physicians Join Petition Drive
Patients and physicians in Washington, DC joined a petition drive calling on Congress for Medicare reform.
Read moreA marathon runner's delayed cardiac testing story
On a cool Melbourne morning, Elena Markovic, 42, could finish an easy ten-kilometre run along the Yarra but struggled on familiar hills. Chest pressure, unusual breathlessness and two episodes of light-headedness had replaced the rhythm she loved. She was preparing for a city marathon when her body began to feel unpredictable.
Her general practitioner recorded an irregular pulse, ordered blood tests and an ECG, and referred her for a rhythm monitor and cardiology review. The initial trace did not explain every symptom. Elena reduced her training, changed routes and began researching what a stress test might show while waiting for the next stage of care.
Elena's account is a composite patient story illustrating delayed cardiac testing, not proof that every wait causes harm. It captures a familiar pattern: vague symptoms, reassuring fragments and a long interval before the right test. During that interval, uncertainty can affect work, family life, insurance decisions and the freedom to exercise.
Australian readers encounter this through a mixed system of Medicare, private cover and state-run public hospitals. Federal and state responsibilities often meet at the point of referral. The policy debate in the United States offers a useful comparison: when cardiovascular reimbursement is cut or misunderstood, access can become a business and workforce issue before it becomes a patient's emergency.
A race interrupted by uncertainty
At first, Melbourne's trams, early trains and crowded coffee queues filled Elena's calendar with the appearance of normality. She still attended track sessions at her local running club and volunteered at weekend races. Yet symptoms began arriving after hills or hard efforts, and recovery took longer. Waiting for cardiology made every ordinary choice feel medically significant.
Eleven weeks after referral, she obtained a private review through her insurer. The specialist ordered an ambulatory monitor, echocardiogram and exercise stress test, but separate scheduling meant the complete assessment took another month. Her insurer covered part of the specialist care and diagnostic fees; she still checked item numbers and kept receipts because she expected some gap payment.
The stress test did not suggest a blocked coronary artery, but it reproduced an abnormal rhythm, leading to further specialist review. Elena says she cannot know whether earlier testing would have changed the clinical outcome. She knows the delay changed her life: she withdrew from the marathon, stopped running for months and carried the question of whether her next step on the street would be safe.
How Australia's pathways shape the wait
Australia's public route usually starts with a GP and a referral to a public hospital outpatient clinic. Patients are then prioritised by clinical urgency, not simply by the order of a referral. In Melbourne, that can mean a routine cardiology appointment waits months, while newly unstable symptoms prompt earlier review. State services, including Victoria's public hospitals, therefore have a direct role in access.
The private route offers another choice, but cost is more complex. The federal Medicare system pays a set rebate for many consultations and tests, while private insurers cover eligible costs under rules set by the Commonwealth. The Private Health Insurance Act 2001 and the Medicare Benefits Schedule shape what can be billed and reimbursed. A Medicare Safety Net payment may assist with eligible out-of-pocket costs, yet it does not buy an earlier appointment.
Many Australians combine these routes: a GP review, privately performed imaging and a specialist appointment financed through a mix of Medicare, insurance and personal payment. This hybrid can speed one step but split records and billing across organisations. Everyday realities such as shift work, unpaid leave, childcare, parking and long regional travel can turn a routine test into a substantial burden, even when the clinical result is reassuring.
When reimbursement reaches the waiting room
Behind every delayed test sits a network of clinicians, technicians and facilities that must be paid to remain available. In the United States, the American College of Cardiology's patient access campaign opposes Medicare physician fee schedule cuts that could weaken cardiovascular practices and the services patients need. Its campaign makes clear that reimbursement policy is not an abstract budget issue; it is a determinant of appointments, testing and continuity.
Australian Medicare is not the same programme as US Medicare, and fee schedules operate differently here. The transferable lesson is narrower but important: if the payment for a consultation or procedure no longer reflects the time, equipment and staff required to deliver it, practices have fewer options to recruit, expand or sustain that work. Patients may experience the consequence as a narrower network, a higher bill or a longer wait.
Three common routes differ in cost, speed and continuity:
| Care route | Typical pathway | How paying works | Main trade-off |
|---|---|---|---|
| Public | GP referral to a state public hospital | Commonwealth and state funding support public services, with Medicare covering eligible items | Clinical triage can create long waits for stable symptoms |
| Private | GP referral to a private specialist, followed by private testing | Medicare rebate, insurer benefit and possible patient payment | Earlier access may cost more and depends on policy terms |
| Hybrid | Public review combined with private tests or scans | Medicare and private payments are mixed according to each service | One part may move faster, while records and follow-up become fragmented |
The route is not simply a preference between public and private care. Urgency, distance, specialist availability, affordability and the ability to attend during work hours can determine which route is realistic. Whichever route applies, patients should ask what urgency means, which service will perform each test, how results will be shared and what happens if symptoms change while the system is still waiting.
Practical steps for patients and supporters
Personal experience gains force when it is handled responsibly and converted into a clear request. Resources on civic participation can help patients understand how to contact representatives, join coalitions and separate a public message from private health details.
- Seek urgent help for new or worsening chest pain, severe breathlessness or fainting. Call 000 for severe or persistent symptoms, particularly when accompanied by sweating, nausea or collapse.
- Ask the GP for a written plan covering the working concern, urgency category, warning signs, requested tests, expected review date and circumstances that should trigger escalation.
- Request an explanation of each test, including what an ECG, Holter monitor, echocardiogram or stress test can assess, what it cannot, and when further review is needed.
- Keep a dated record of symptoms, triggers, duration, medication and training changes. A concise timeline can help clinicians distinguish patterns that an isolated appointment misses.
- Check the Medicare item, insurer coverage, likely gap and any Safety Net assistance before private testing. Seek a written estimate and keep receipts for claims and referral purposes.
- If symptoms change, contact the GP again and ask whether the referral should be upgraded; a second opinion or private outpatient review can be discussed when clinically appropriate and affordable.
- Share a story only with informed consent. Remove identifying details, explain the delay and its effects, and send the account to patient groups and the campaign linked earlier rather than posting it publicly without safeguards.
These actions do not replace clinical judgement, and no checklist can remove uncertainty. They do something simpler and useful: make the next conversation specific, preserve the patient's voice and ensure that a policy problem is visible to the people who can respond.
Turn a private struggle into public pressure
Elena eventually returned to gentle running after specialist advice, though she no longer treats every missed session as a personal failure. More importantly, she no longer asks only whether her heart was “fine”. She now asks whether patients can receive an appropriately timed assessment, an understandable explanation and a clear safety net when a system moves too slowly.
If this account resembles your experience, write a short, factual account while the details are fresh: dates, symptoms, referral pathway, waiting intervals, costs and the effect on daily life. Use the patient access campaign's story and advocacy resources to find the appropriate channel, share only with consent, and ask your federal or state representative to press for timely cardiac access backed by workforce and funding data. Personal endurance may carry a patient through a long wait; coordinated evidence can help shorten it for the next runner.
Campaign for Patient Access