About the Campaign
The Campaign for Patient Access was launched by the American College of Cardiology in December 2009 as a national effort to reverse Medicare physician fee schedule cuts that threatened cardiovascular care. The site provided background on the issue, the ACC's legislative and legal response, resources for patients and practices, a newsroom tracking coverage across the country, and ways for supporters to share their stories and support the campaign.
From the Newsroom
Medicare Meltdown: Access to Health Care in "Critical Condition"
A press release warning that cardiology access was in critical condition due to Medicare payment cuts.
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Cardiology Takes Legal Action Against Medicare
The ACC filed suit against HHS Secretary Kathleen Sebelius over the 2010 Physician Fee Schedule.
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ACC Statement on Health Care Reform
The ACC used the State of the Union address to highlight the need to reverse the Medicare cuts.
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Medicare Patients and Physicians Join Petition Drive
Patients and physicians in Washington, DC joined a petition drive calling on Congress for Medicare reform.
Read moreProtecting Access to Advanced Lipid Care in Australia
Advanced lipid management programs help people whose cholesterol risk cannot be controlled through a routine prescription and an occasional general practice visit. These services may include specialist assessment, familial hypercholesterolaemia screening, genetic counselling, apoB or lipoprotein(a) testing, medication reviews and access to therapies such as PCSK9 inhibitors or inclisiran.
When physician payments are reduced, the effects can extend well beyond a practice’s accounts. Specialist clinics may shorten appointments, defer equipment purchases, limit outreach sessions or stop accepting complex referrals. For Australians, the issue is especially relevant because access already varies sharply between metropolitan centres, regional towns and remote communities.
What Advanced Lipid Programs Provide
A high-quality lipid service is designed for patients with elevated cardiovascular risk, including people with premature coronary artery disease, severe hypercholesterolaemia, diabetes, kidney disease or a strong family history. Care often involves a cardiologist, lipidologist, clinical pharmacist, nurse educator and dietitian working from a shared treatment plan.
These programs also support prevention across a family. A patient diagnosed with familial hypercholesterolaemia may need cascade testing for children, siblings and parents, followed by long-term monitoring. Identifying affected relatives early can prevent heart attacks and strokes, yet the work requires time for careful history-taking, counselling and follow-up.
Advanced treatment can be difficult to manage in a standard appointment. Clinicians may need to review adherence, interactions, injection technique, pregnancy considerations, liver results, renal function and the response to several previous medicines. Funding pressure can make this detailed care less attractive to practices that already operate with narrow margins.
How Payment Pressure Reaches the Clinic
A cut to a physician fee schedule does not remain an abstract policy decision. It can reduce the revenue available for nurses, administrative staff, cold-chain storage, pathology coordination and patient recall systems. These services are often essential to lipid management, even when they are not separately visible on a bill.
Clinics may respond by prioritising shorter consultations or higher-volume services. Patients with straightforward medication renewals may be easier to accommodate than those needing a comprehensive risk assessment. Over time, advanced lipid programs can become referral-only, operate on fewer days or be concentrated in large private hospitals.
Australia’s mixed funding system adds complexity. A patient might use Medicare for some consultations, face a private gap for others, and rely on the Pharmaceutical Benefits Scheme for eligible medicines. If a specialist service cannot sustain its staffing model, the patient may have to navigate several disconnected pathways to receive one coherent plan.
Metropolitan Expertise Is Not Evenly Shared
Sydney, Melbourne and Brisbane have the greatest concentration of cardiologists, tertiary hospitals and private lipid clinics, but metropolitan access is not uniform. Outer-suburban patients may still face long waits, limited public appointments and substantial travel across the city. A person in western Sydney, for example, may struggle to attend a clinic in the city centre during working hours.
The distance becomes more pronounced in regional Australia. Patients from northern Queensland, inland New South Wales or Western Australia may need to travel to Townsville, Newcastle, Perth or another major centre for specialist review. Flights, fuel, accommodation and time away from work can make a clinically recommended appointment unaffordable.
Telehealth can reduce some travel, particularly for medication reviews and results discussions. It cannot replace every physical assessment, blood test, injection demonstration or family screening appointment. Unreliable internet, limited local pathology services and the need for a collaborating doctor can also restrict its usefulness in remote communities.
The Patient Cost of Delayed Specialist Care
When access to a lipid program contracts, patients may wait longer before their treatment is intensified. A person whose low-density lipoprotein cholesterol remains above target could spend months cycling through prescriptions without specialist review. The delay is clinically important for people with established cardiovascular disease or inherited high cholesterol.
The financial burden is broader than the consultation fee. Patients may pay for transport, parking, accommodation, repeated pathology and time away from employment or caring responsibilities. In regional areas, one appointment can require a full day of travel. These costs can lead people to postpone care even when the medicine itself is subsidised.
A personal account of long-distance care illustrates how closures can shift the burden to patients; this patient travel story reflects the practical consequences of losing a local specialist service. Such experiences matter because access should be measured by whether a person can realistically receive care, not simply whether a service exists somewhere in the health system.
Treatment Delays Can Affect Cardiovascular Risk
For some patients, lifestyle advice and a statin are appropriate first steps. Others need rapid escalation because of a previous heart attack, familial hypercholesterolaemia, very high LDL cholesterol or intolerance to standard therapy. A reduced supply of specialist appointments may delay the point at which clinicians consider combination treatment or refer for advanced medicines.
Access problems can also weaken treatment persistence. Patients are more likely to discontinue therapy when side effects are not addressed promptly, instructions are unclear or repeat prescriptions become difficult to organise. Lipid clinics often provide the education and follow-up that help people remain on treatment over many years.
The impact may be greatest for people whose risks are less visible in a short consultation. Aboriginal and Torres Strait Islander patients, culturally diverse communities and people living with disability may need communication, transport and care arrangements tailored to their circumstances. A service that measures only appointment numbers can miss these barriers.
Keeping Complex Care Connected
Health services can protect capacity by defining which patients require specialist lipid input and which can be safely managed in general practice with clear protocols. Shared-care arrangements may allow a cardiologist to establish the treatment plan while a GP, pharmacist or nurse-led service handles routine monitoring closer to home.
Regional partnerships are valuable when they are properly resourced. A metropolitan cardiologist can support a visiting clinic in Bendigo, Toowoomba or Launceston, while local clinicians manage blood tests and follow-up. The arrangement needs reliable referral pathways, rapid advice and clear responsibility for PBS documentation and medication changes.
Digital records and structured templates can reduce duplication, but technology should support clinical relationships rather than replace them. Patients need a single, understandable plan stating their LDL or non-HDL target, current medicines, next test date, warning signs and the professional to contact if problems arise.
Measuring Access and Supporting Advocacy
Decision-makers should track more than the number of cardiology appointments. Useful measures include waiting time for high-risk referrals, the proportion of patients reaching agreed lipid targets, missed follow-ups, rural travel distance, availability of family screening and the time required for approval of eligible advanced therapies.
Professional advocacy can help make these effects visible when fee changes are debated. Physicians and patients can document cancelled clinics, reduced outreach, longer waits and the extra costs of travelling for care. The broader campaign message is that payment policy should be assessed against patient access and cardiovascular outcomes, rather than short-term budget savings alone.
The following comparison shows how funding pressure may change the experience of care across different settings:
| Area of access | Stable advanced lipid service | Service under funding pressure |
|---|---|---|
| Specialist appointments | Regular reviews for high-risk patients | Longer waits and narrower eligibility |
| Family screening | Coordinated testing and counselling | Referrals delayed or handled inconsistently |
| Medication management | Prompt review of side effects and response | Therapy changes postponed |
| Regional outreach | Scheduled visiting clinics and shared care | Outreach reduced or cancelled |
| Telehealth | Used alongside local testing and examination | Used as a substitute without adequate support |
| Patient costs | Predictable travel and limited gaps | More transport, time and private expenses |
Protecting these services requires attention to the whole care pathway. A consultation may be the visible component, but safe lipid management also depends on nurses, pharmacists, pathology providers, administrative teams and local clinicians. Removing support from any part of that network can reduce the value of the specialist appointment itself.
Australians can strengthen the evidence base by sharing de-identified experiences with professional bodies, health departments and elected representatives. Patients and clinicians who describe the practical effects of closures, reduced outreach or delayed treatment help turn an accounting change into a clear public health issue.
Access to advanced lipid management should reflect clinical need, not postcode or personal capacity to absorb travel and private costs. Supporting sustainable specialist services, coordinated regional care and fair funding decisions can help more people receive timely prevention and reduce avoidable cardiovascular events. Share the realities of care with policymakers and professional advocates so that maintaining access remains central to future funding decisions.
Campaign for Patient Access