About the Campaign
The Campaign for Patient Access was launched by the American College of Cardiology in December 2009 as a national effort to reverse Medicare physician fee schedule cuts that threatened cardiovascular care. The site provided background on the issue, the ACC's legislative and legal response, resources for patients and practices, a newsroom tracking coverage across the country, and ways for supporters to share their stories and support the campaign.
From the Newsroom
Medicare Meltdown: Access to Health Care in "Critical Condition"
A press release warning that cardiology access was in critical condition due to Medicare payment cuts.
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Cardiology Takes Legal Action Against Medicare
The ACC filed suit against HHS Secretary Kathleen Sebelius over the 2010 Physician Fee Schedule.
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ACC Statement on Health Care Reform
The ACC used the State of the Union address to highlight the need to reverse the Medicare cuts.
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Medicare Patients and Physicians Join Petition Drive
Patients and physicians in Washington, DC joined a petition drive calling on Congress for Medicare reform.
Read morePlanning A Community Forum On Medicare And Heart Care Access
A well-run community forum can turn concern about heart care into practical local action. It gives patients, carers, clinicians, policymakers and community organisations a shared setting to discuss affordability, waiting times, transport, workforce shortages and the quality of Medicare-supported cardiovascular services.
In Australia, the word Medicare refers to the national public health system, while US campaign materials may use Medicare to describe federal insurance for older people and some patients with disabilities. A forum should explain that distinction early, then focus on the local issues residents experience when trying to obtain a GP referral, cardiac testing, specialist advice, rehabilitation or urgent treatment.
| Issue | Australian context | Useful forum focus |
|---|---|---|
| Public funding | Medicare rebates are shaped by the Medicare Benefits Schedule and government policy | Explain rebates, out-of-pocket costs and bulk-billing availability |
| Specialist access | Public cardiology clinics may have long waits, while private appointments can be expensive | Map referral pathways and waiting-list pressures |
| Rural care | Regional and remote communities may face long travel distances and fewer specialists | Discuss telehealth, visiting clinics and patient travel support |
| Preventive care | Risk checks, medicine reviews and cardiac rehabilitation can reduce later hospital demand | Promote early assessment and follow-up |
| Community advocacy | PHNs, councils, hospitals and state health departments influence local services | Agree on evidence-based requests and responsible follow-up |
Define The Forum’s Purpose And Scope
Begin with a short purpose statement that residents can understand. For example, the event may aim to identify barriers to affordable heart care in a particular region, explain how Medicare-funded services work, and develop a small number of realistic recommendations for decision-makers. A defined purpose prevents the meeting from becoming a general discussion of every problem in the health system.
Set boundaries around what the forum can achieve. It may document patient experiences, connect people with services, clarify billing arrangements and present a collective case to a local MP or health authority. It cannot promise immediate changes to rebates, specialist numbers or hospital budgets. Being clear about this builds trust and avoids raising expectations that organisers cannot meet.
Decide whether the event is primarily educational, consultative or advocacy-focused. An educational meeting might include a cardiologist and a Medicare billing expert. A consultative forum might gather evidence about delayed diagnosis or transport barriers. An advocacy event could ask attendees to endorse a short statement about cardiovascular access and support a submission to a parliamentary inquiry.
Build A Local Coalition
A strong organising group should include people who understand both clinical realities and everyday access barriers. Invite a cardiologist, GP, practice manager, cardiac nurse, pharmacist, patient advocate, carer, Aboriginal health representative and community worker. Primary Health Networks can help identify local services, while councils may provide venues, promotion or community development support.
Australia’s health system is shared across federal, state and territory governments, so local mapping matters. Medicare rebates and the MBS are federal concerns, whereas public hospitals, ambulance services and many community programs operate through state or territory systems. A forum in Melbourne may focus on public hospital outpatient waits; an event in Brisbane may examine regional referral pathways; a meeting serving western Sydney may need to address language diversity and pressure on bulk-billing practices.
Include rural and remote perspectives rather than treating metropolitan services as the default. Residents around Dubbo, Cairns, Mildura or the Kimberley may face travel, accommodation and workforce problems that are less visible in Sydney or Melbourne. Consider a hybrid format, a satellite gathering at a local library, or a phone-in option for people who cannot travel.
A practical organising group can divide responsibilities clearly:
- Patient liaison and lived-experience support
- Speaker invitations and clinical fact-checking
- Venue access, technology and safety
- Promotion through practices, councils and community groups
- Note-taking, evaluation and follow-up correspondence
Design A Safe And Accessible Event
Choose a venue near public transport with accessible entrances, toilets, seating and clear signage. Community halls, council chambers, hospital education rooms and public libraries can work well. For areas with limited public transport, schedule the meeting before dark and investigate community transport, parking concessions or a coordinated lift service.
Offer several ways to participate. A two-hour evening forum may suit working families, while a daytime session can be more practical for retirees and carers. Provide an online link only if the venue has reliable audio, a microphone and someone assigned to monitor remote contributions. Registration should collect access needs, interpreter requests and dietary requirements without asking for unnecessary health information.
Respect local culture and community expectations. An Acknowledgement of Country may be appropriate, and Aboriginal and Torres Strait Islander participants should be involved in deciding how the event is framed. In some communities, an informal shared supper or morning tea helps people stay and talk, but food should not replace proper time for discussion. Use plain English, avoid unexplained clinical terms and arrange interpreters for major language groups in the area.
Prepare a participant pack that works for people with different levels of health literacy. It can include a simple explanation of Medicare rebates, a glossary, local referral contacts, questions to ask a cardiology practice and information about urgent symptoms. Make it clear that a forum is not a substitute for medical advice and that chest pain, severe breathlessness or sudden collapse requires emergency assistance through Triple Zero (000).
Use Evidence Without Losing The Human Story
Personal experiences can show how policy settings affect real lives, but they need careful handling. Invite speakers to describe what happened, what support was unavailable and what change would have helped. Avoid pressuring anyone to disclose a diagnosis, income, immigration status or family circumstances. Offer a private way to share stories, such as an anonymous form or a short written submission.
Balance lived experience with reliable local evidence. Useful sources may include Australian Institute of Health and Welfare data, Australian Bureau of Statistics information, state health reports, the Heart Foundation, local hospital data and PHN needs assessments. Ask speakers to distinguish between national statistics, regional figures and personal observations. This makes the forum credible when its findings are presented to MPs, health departments or journalists.
Explain costs in terms that residents recognise. Some cardiology services may be bulk billed, while others involve a gap payment, and the amount can vary by practice, service and patient circumstances. Private health insurance may assist with hospital treatment but does not remove every specialist, diagnostic or pharmacy cost. Participants should leave knowing where to verify fees rather than relying on assumptions or outdated social media posts.
Use a moderated agenda that gives patients a meaningful voice without allowing one account to dominate. A useful format is a brief local data presentation, two patient perspectives, a clinician response, small-group discussion and a final prioritisation exercise. A trained facilitator should correct misinformation respectfully and prevent partisan debate from overwhelming the health access issue.
Turn Discussion Into Practical Commitments
End the forum with a short list of priorities rather than a long catalogue of grievances. Participants might support improved access to cardiac rehabilitation, clearer fee information, more visiting cardiology clinics, better referral communication or expanded telehealth for suitable follow-up appointments. Each priority should identify the responsible organisation, the evidence supporting it and a reasonable next step.
Record contributions accurately and obtain consent before using names, photographs or quotations. Within a week, circulate a plain-language summary that states what was heard, what remains uncertain and what organisers will do next. Send the document to local MPs, state health representatives, hospital executives, PHNs, councils and relevant professional bodies.
Create a follow-up schedule with named owners. A campaign can lose momentum if everyone assumes someone else will contact decision-makers. Set dates for a written submission, a meeting with the local MP, a service directory update and a second community check-in. Track responses publicly where appropriate, while protecting confidential patient information.
The most useful follow-up actions may include:
- Publishing a local access brief with verified evidence
- Requesting clearer fee and referral information from practices
- Raising transport and waiting-time issues with the relevant health authority
- Connecting residents with cardiac rehabilitation and prevention services
- Sharing de-identified stories with policymakers and community media
- Reviewing progress at a later forum or online briefing
A community forum on Medicare and heart care access is most effective when it links listening with accountable action. Organisers should invite local residents, clinicians, carers and community partners to the next planning meeting, register the event with relevant networks, and commit to publishing a clear record of priorities and responses. Use the gathering to strengthen understanding, protect patient voices and press for practical improvements in cardiovascular care across Australian communities.
Campaign for Patient Access