About the Campaign
The Campaign for Patient Access was launched by the American College of Cardiology in December 2009 as a national effort to reverse Medicare physician fee schedule cuts that threatened cardiovascular care. The site provided background on the issue, the ACC's legislative and legal response, resources for patients and practices, a newsroom tracking coverage across the country, and ways for supporters to share their stories and support the campaign.
From the Newsroom
Medicare Meltdown: Access to Health Care in "Critical Condition"
A press release warning that cardiology access was in critical condition due to Medicare payment cuts.
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Cardiology Takes Legal Action Against Medicare
The ACC filed suit against HHS Secretary Kathleen Sebelius over the 2010 Physician Fee Schedule.
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ACC Statement on Health Care Reform
The ACC used the State of the Union address to highlight the need to reverse the Medicare cuts.
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Medicare Patients and Physicians Join Petition Drive
Patients and physicians in Washington, DC joined a petition drive calling on Congress for Medicare reform.
Read moreBuilding a Local Coalition to Protect Cardiology Access
Cuts to medical funding rarely appear as an abstract policy issue in a local community. They can mean longer waits, fewer outreach clinics, higher out-of-pocket costs and difficult choices for people managing heart disease. A well-organised coalition gives patients, cardiologists, GPs, nurses and community organisations a shared way to show what those changes mean in everyday life.
For an Australian campaign, the strongest approach is grounded in local health services and the Medicare system. The Medicare Benefits Schedule, bulk-billing pressures, rural travel distances and the role of Primary Health Networks all shape how a funding reduction is felt. A coalition can turn those local realities into credible evidence for MPs, health departments, professional bodies and the public.
| Coalition need | Practical local response | Evidence to collect |
|---|---|---|
| Show the effect on patients | Gather de-identified stories from people using cardiology services | Travel time, waiting periods, costs and missed appointments |
| Include the full care team | Invite GPs, specialists, nurses, practice managers and allied health workers | Service capacity, appointment demand and referral delays |
| Represent regional communities | Work through local hospitals, PHNs, Aboriginal health services and community groups | Distance to care, outreach frequency and transport barriers |
| Present a clear policy case | Link funding changes to access, prevention and continuity of care | Trends in fees, bulk billing, staffing and service availability |
Start With A Specific Access Concern
A coalition needs a clearly defined issue before it asks busy people to participate. The concern might be a proposed reduction in Medicare rebates, a change affecting specialist consultations, the withdrawal of a local outreach service or rising patient fees that make follow-up care unaffordable. Avoid broad claims that are difficult to verify. Name the service, location, affected group and decision currently under review.
Frame the campaign around access to safe, timely care rather than professional income alone. In Australia, a patient with a Medicare card may still face gap payments, transport expenses and time away from work. For someone in Dubbo, Townsville or a remote community, seeing a cardiologist may involve a long drive or an overnight stay. Those practical consequences make the issue understandable to local media and elected representatives.
Write a short campaign statement that explains what is changing, who is affected and what action is sought. It should fit on one page and use plain language. A strong statement might call for protection of affordable cardiology appointments, adequate indexation of relevant MBS items or continued support for regional outreach.
Bring Patients And Providers Into The Same Room
Begin with a small organising group rather than waiting for a large public meeting. Invite a cardiologist, a GP, a patient advocate, a practice manager, a nurse and someone who understands local community networks. Include people from public and private settings where possible. Their different perspectives will prevent the campaign from becoming narrowly focused on one practice or profession.
Approach potential partners through trusted channels. Local hospitals, GP practices, cardiac rehabilitation programs, Heart Foundation networks, PHNs, health consumer councils and Aboriginal Community Controlled Health Services can help reach people who are often missed by online campaigns. Regional services may also connect the group with the Royal Flying Doctor Service or visiting specialist programs where distance is a major barrier.
Set expectations early. Members should agree on the issue, the evidence they can share, how decisions will be made and who may speak publicly. A simple written agreement can cover privacy, media contact, social media use and respectful conduct. This is especially important when patients are discussing sensitive medical experiences.
Make The Coalition Representative
A credible campaign reflects the community that relies on the service. Seek participation from older Australians, carers, people living with chronic disease, culturally diverse communities, Aboriginal and Torres Strait Islander organisations, people with disability and residents of outer metropolitan or rural areas. Representation should involve meaningful roles, not just a name on a supporters’ list.
Use several ways to participate. Some people will attend a meeting in person, while others may provide a written account, join a phone briefing or approve a de-identified story. Offer accessible venues, clear timing and options for people with mobility, hearing, language or transport needs. A short briefing at a community centre may work better than a formal evening event.
Ask partner organisations to nominate a contact person and explain what support they can provide. One practice might supply anonymised service data, another may host a listening session, and a patient group may coordinate letters to MPs. This division of work makes the coalition more resilient and avoids placing every task on one volunteer.
Gather Evidence That Carries Weight
Personal stories provide emotional clarity, but decision-makers also need consistent evidence. Create a simple collection form covering location, type of care, waiting time, travel distance, direct cost and what happened when care was delayed or unavailable. Do not collect unnecessary clinical details. Obtain written permission before using any identifying information.
Combine stories with service-level information. Providers can review appointment backlogs, referral volumes, cancelled clinics, bulk-billing rates, gap fees and the availability of nurses or allied health staff. Data should be presented as trends and ranges where possible. A single dramatic example may attract attention, but a pattern across several practices is harder to dismiss.
Useful evidence can include:
- The number of patients travelling outside their local area for cardiology care
- Changes in appointment availability, waiting times or outreach clinic frequency
- Typical consultation gaps, transport costs and other patient expenses
- Referrals postponed because a patient could not afford or reach the service
- Workforce vacancies, reduced clinic sessions or pressure on public hospitals
Protect confidentiality throughout the process. Remove names, dates of birth, Medicare details and identifying clinical information from public material. Store consent forms securely and give contributors the option to withdraw their story before publication.
Give Providers A Safe Public Role
Doctors and other health professionals may support the campaign but feel unable to spend hours on advocacy. Make participation practical. Provide a one-page brief, agreed talking points, a calendar of key dates and ready-to-edit correspondence for MPs or local newspapers. A practice should never have to develop the campaign message from scratch.
The coalition should distinguish evidence from political messaging. Providers can explain how funding affects appointment capacity, continuity of care and referral pathways, while patients can describe affordability and access. Encourage members to speak within their expertise and to acknowledge uncertainty. Accurate, measured language earns more trust than claims that every service will disappear immediately.
Coordinate media activity through one spokesperson or a small media team. A cardiologist, patient representative and regional health leader may offer complementary voices. Before an interview, agree on the main message, the local example and the requested policy response. Avoid criticising individual clinicians or patients; the target should be the funding decision and its effect on care.
Turn Community Support Into Political Pressure
Map the people who can influence the decision: federal MPs and senators, state representatives, health department officials, local councils, hospital boards and professional organisations. In Australia, the relevant authority may differ depending on whether the issue concerns the MBS, state-funded hospital services, private fees or a local commissioning arrangement. Confirm who controls the decision before directing the campaign.
Arrange small, focused meetings rather than relying only on a mass petition. Give representatives a concise briefing pack containing the coalition statement, local figures, two or three patient stories, provider comments and a specific request. Ask for a written response and record any commitments. Residents can also attend electorate office meetings, make considered submissions and write to local newspapers.
A coalition can strengthen its public profile through a community forum, a local radio interview, an opinion piece or a coordinated day of storytelling. Keep every public claim supported by evidence. If the campaign receives criticism, respond with facts and explain the effect on patients rather than escalating personal disputes.
Keep The Campaign Active After The Announcement
Funding decisions often move through consultation, budget updates, reviews and implementation stages. Maintain a shared calendar so members know when submissions close, parliamentary debates occur or local services may change. Assign responsibility for monitoring official announcements and distributing verified updates.
Review the coalition’s results every few weeks. Track new supporters, meetings held, media coverage, patient experiences and responses from decision-makers. If the original demand is achieved, communicate that outcome clearly. If it is not, explain the next stage, such as seeking transitional support, pressing for a review or documenting the impact after implementation.
Sustained advocacy depends on manageable tasks. Rotate meeting facilitation, publish short updates and recognise the contribution of volunteers. Keep the coalition focused on access, affordability and continuity of cardiovascular care so that it remains useful beyond a single funding dispute.
Put Your Coalition On The Record
Bring the first organising group together, agree on the local access problem and nominate one person to coordinate the next meeting. Contact nearby practices, patient networks, the PHN, community health organisations and local elected representatives with a concise statement of the issue. Invite them to contribute evidence, stories or practical support.
Then publish a clear public position backed by consented patient experiences and verified service data. Ask decision-makers to protect affordable, timely cardiology care and report their responses to the community. A local coalition becomes influential when people act together, speak accurately and keep patient access at the centre of every request.
Campaign for Patient Access